Sickle cell disease affects approximately 100,000 Americans and occurs among about 1 in every 365 African American births and about 1 in 16,000 Hispanic-American births. 1 in 12 African Americans are carriers of sickle cell trait, most are not aware. Florida is in the top 3 states with the highest number of people living with Sickle Cell Disease.
ASAP provides a wide range of networking, awareness, and educational services for the past 8 years. We believe that through community outreach and educational events, we can encourage positive relationships between our Sickle Cell and medical communities. All of our programs and events are funded through sponsorship and fundraising opportunities. Some of our programs and events include:
•Annual "Be Informed" Sickle Cell Awareness Forum
•Education based seminar and workshop collaborations with various schools, universities, and churches
•Annual Picnic for Sickle Cell Families
•Appreciation Bruch for Sickle Cell caregivers
•Hospitality Committee that visits and follow ups with sick/hospitalized warriors
•Thanksgiving Harvest Luncheon
•Holiday Toy Drive
•Thanksgiving Basket Giveaway to Sickle Cell Families
•Virtual Sickle Cell play dates for ages children under 12, Teen & General Support Group
•Care package drop-offs to our Sickle Cell families
•Education based seminars, workshops, collaborations with various schools, universities, and churches
•(Community Of Parents Empowered) C.O.P.E. Program
Advancing Sickle Cell Advocacy Project, Inc. Mission is to change the narrative concerning sickle cell disease by bringing awareness and educating the community, advocating on behalf of sickle cell warriors, and bridging the gap between the medical community and sickle cell clients. We are serving as a voice to the voiceless on a silent disease that needs to be spoken up for.