NTMinfo & Research, Inc.

Finding Hope and Community in the Fight Against NTM

Did you know that everyday activities like taking a shower or working in the garden could expose someone to a hidden health threat? Nontuberculous mycobacteria (NTM) are naturally occurring pathogens found all around us in soil and tap water. For tens of thousands of people in the U.S. every year, these environmental bacteria lead to serious lung infections that can cause or severely worsen respiratory damage, including conditions like bronchiectasis.

That is why NTMinfo & Research, Inc. exists.

Founded 23 years ago in Miami-Dade County by local resident and NTM patient Fern Leitman, the organization was born out of a personal vision to connect, educate, and support people navigating this rare and challenging pulmonary disease.

Today, Florida unfortunately ranks second in the nation for pulmonary NTM cases, with an estimated 27,001 people affected, carrying an annual healthcare cost of over $243 million, while nationally, more than 220,000 cases are reported.

To ensure no one faces this journey alone, NTM Info & Research has grown into a leading collective voice for the NTM and bronchiectasis communities. Operating three dedicated support groups in Florida alongside a robust nationwide network, the organization is making waves:

• Driving Impact: Working tirelessly with leading scientists, government agencies, and industry leaders to make NTM a top priority.
• Accelerating Treatments: Funding innovative research and building a stronger network of doctors well-versed in treating the disease.
• Empowering Patients: Providing vital educational resources for both patients and healthcare providers to encourage early detection and better care.

Miami is also home to a Care Center Network facility for NTM and Bronchiectasis. Having a designated facility here in Miami helps to ensure access to quality care for people with these lung diseases. 

By raising awareness and fostering a strong community, NTM Info & Research is transforming the path forward, saving and improving lives every step of the way.